"A revised and updated directory for the Internet age."--Cover.
INTERNAL BIBLIOGRAPHIES/INDEXES NOTE
Text of Note
Includes bibliographical references and index.
CONTENTS NOTE
Text of Note
Introduction; PART I: THE ESSENTIALS; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; PART III. APPENDICES; ONLINE GLOSSARIES; INFANTILE REFSUM DISEASE GLOSSARY; INDEX.
0
SUMMARY OR ABSTRACT
Text of Note
This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells parents where and how to look for information covering virtually all topics related to infantile refsum disease (also Disorder of Cornification 11 (Phytanic Acid Type); DOC 11 (Phytanic Acid Type); Heredopathia Atactica Polyneuritiformis; Hypertrophic Neuropathy of Refsum; Phytanic Acid Storage Disease; Refsum Disease), from the essentials to the most advanced a.