عنوان

The troubled dream of genetic medicine :

(Number (ISBN

0801883253

(Number (ISBN

0801883261

(Number (ISBN

9780801883255

(Number (ISBN

9780801883262

Number

b722770

Title Proper

The troubled dream of genetic medicine :

General Material Designation

[Book]

Other Title Information

ethnicity and innovation in Tay-Sachs, cystic fibrosis, and sickle cell disease /

First Statement of Responsibility

Keith Wailoo and Stephen Pemberton.

Place of Publication, Distribution, etc.

Baltimore :

Name of Publisher, Distributor, etc.

Johns Hopkins University Press,

Date of Publication, Distribution, etc.

2006.

Specific Material Designation and Extent of Item

viii, 249 pages ;

Dimensions

21 cm

Text of Note

Includes bibliographical references (pages 175-222) and index.

Text of Note

Ethnic symbols in conflicted times -- Eradicating a "Jewish gene": promises and pitfalls in the fight against Tay-Sachs disease -- Risky business in white America: gene therapy and other ventures in the treatment of cystic fibrosis -- A perilous lottery for the Black family: sickle cells, social justice, and the new therapeutic gamble -- Dreams amid diversity.

0

Text of Note

Why do racial and ethnic controversies become attached, as they often do, to discussions of modern genetics? How do theories about genetic difference become entangled with political debates about cultural and group differences in America? Such issues are a conspicuous part of the histories of three hereditary diseases: Tay-Sachs, commonly identified with Jewish Americans; cystic fibrosis, often labeled a "Caucasian" disease; and sickle cell disease, widely associated with African Americans. In this captivating account, historians Keith Wailoo and Stephen Pemberton reveal how these diseases, fraught with ethnic and racial meanings for many Americans, became objects of biological fascination and crucibles of social debate. Peering behind the headlines of breakthrough treatments and coming cures, they tell a complex story: about different kinds of suffering and faith, about unequal access to the promises and perils of modern medicine, and about how Americans consume innovation and how they come to believe in, or resist, the notion of imminent medical breakthroughs. With Tay-Sachs, cystic fibrosis, and sickle cell disease as a powerful backdrop, the authors provide a glimpse into a diverse America where racial ideologies, cultural politics, and conflicting beliefs about the power of genetics shape disparate health care expectations and experiences.

Cystic fibrosis-- Genetic aspects.

Ethnic groups-- Diseases.

Genetic disorders-- Research-- Moral and ethical aspects.

Sickle cell anemia-- Genetic aspects.

Tay-Sachs disease-- Genetic aspects.

Anemia, Sickle Cell.

Cystic Fibrosis.

Genetic Diseases, Inborn-- ethnology.

Genetic Diseases, Inborn-- prevention & control.

Health Services Accessibility.

Tay-Sachs Disease.

Drépanocytose-- Aspect génétique.

Groupes ethniques-- Maladies.

Maladies héréditaires-- Recherche-- Aspect moral.

Mucoviscidose-- Aspect génétique.

Tay-Sachs, Maladie de-- Aspect génétique.

Cystic fibrosis-- Genetic aspects.

Cystic fibrosis-- Genetic aspects.

Ethnic groups-- Diseases.

Ethnic groups-- Diseases.

Genetic disorders-- Research-- Moral and ethical aspects.

Sickle cell anemia-- Genetic aspects.

Sickle cell anemia-- Genetic aspects.

Tay-Sachs disease-- Genetic aspects.

Number

Edition

Class number

Book number

Class number

Book Number

Wailoo, Keith.

Pemberton, Stephen Gregory.

Date of Transaction

20201208144613.0

Electronic name

[Book]

Y