ﺑﺮرﺳﻰ راﺑﻄﻪ ﺑﻴﻦ ﻓﺸﺎر ﻣﺮاﻗﺒﺘﻰ،آﻣﺎدﮔﻰ ﺑﺮاى ﻣﺮاﻗﺒﺖ و ﻛﻴﻔﻴﺖ زﻧﺪﮔﻰ در ﻣﺮاﻗﺒﻴﻦ ﺧﺎﻧﮕﻰ ﺳﺎﻟﻤﻨﺪان ﻣﺒﺘﻼﺑﻪ آﻟﺰاﻳﻤﺮ در اﻧﺠﻤﻦ آﻟﺰاﻳﻤﺮ اﻳﺮان در ﺳﺎل ٩٧
[پایان نامه]
The relationship between caregivers' Strain, preparedness for caregiving and quality of life in caregivers of patients with Alzheimer in Iran Alzheimer's Association in ٢٠١٩
علوم بهزیستی و توانبخشی University of Social Welfare and Rehabilitation
۱۳۹۹
۹۵ص.
پیوست
کارشناسي ارشد
پرستاری Nursing
۱۳۹۹/۱۱/۰۶
زﻣﻴﻨﻪ و ﻫﺪف: ﻣﺮاﻗﺒﺖ از ﺑﻴﻤﺎران ﻣﺒﺘﻼﺑﻪ آﻟﺰاﻳﻤﺮ از ﺳـﺨﺖﺗﺮﻳﻦ، ﺻـﺪﻣﻪ زﻧﻨـﺪهﺗﺮﻳﻦ و ﭼـﺎﻟﺶﺑﺮاﻧﮕﻴﺰﺗﺮﻳﻦ ﻧـﻮع ﻣﺮاﻗﺒﺖ اﺳﺖ و ﻣﺮاﻗﺐ را در ﻣﻌﺮض ﺳﻄﻮح ﺑﺎﻻى ﻓﺸﺎر ﻣﺮاﻗﺒﺘﻲ ﻗﺮار ﻣﻲدﻫﺪ و ﻫﻤﭽﻨﻴﻦ ﻓﺸﺎر ﻣﺮاﻗﺒﺘﻲ ﻣﻨﺠـﺮ ﺑـﻪ ﻛﺎﻫﺶ ﻛﻴﻔﻴﺖ زﻧﺪﮔﻲ در ﻣﺮاﻗﺒﻴﻦ ﻣﻲﺷﻮد .ازاﻳﻦرو ﻫﺪف اﻳﻦ ﺗﺤﻘﻴﻖ ﺑﺮرﺳﻲ راﺑﻄﻪ ﺑـﻴﻦ ﻓﺸـﺎر ﻣﺮاﻗﺒﺘﻲ،آﻣـﺎدﮔﻲ ﺑﺮاى ﻣﺮاﻗﺒﺖ و ﻛﻴﻔﻴﺖ زﻧﺪﮔﻲ در ﻣﺮاﻗﺒﻴﻦ ﺧﺎﻧﮕﻲ ﺳﺎﻟﻤﻨﺪان ﻣﺒﺘﻼﺑﻪ آﻟﺰاﻳﻤﺮ ﻣﻲ ﺑﺎﺷﺪ.روش: ﭘﮋوﻫﺶ ﺣﺎﺿﺮ از ﻧﻮع ﺗﻮﺻﻴﻔﻲ- ﺗﺤﻠﻴﻠﻲ و ﺟﺎﻣﻌﻪ ﭘﮋوﻫﺶ اﻳﻦ ﻣﻄﺎﻟﻌﻪ ﻛﻠﻴﻪ ﻣـﺮاﻗﺒﻴﻦ ﻣﺮاﺟﻌﻪﻛﻨﻨـﺪه ﺑـﻪ اﻧﺠﻤﻦ آﻟﺰاﻳﻤﺮ اﻳﺮان اﺳﺖ ﻛﻪ ﺣﺪاﻗﻞ ٦ ﻣﺎه ﺳﺎﺑﻘﻪ ﻣﺮاﻗﺒﺖ از ﺑﻴﻤﺎر ﻣﺒﺘﻼﺑﻪ آﻟﺰاﻳﻤﺮ در ﻣﻨﺰل را داﺷﺘﻨﺪ. ﻧﻤﻮﻧﻪﮔﻴﺮى ﺑﻪ روش در دﺳﺘﺮس و ﻣﺒﺘﻨﻲ ﺑﺮ ﻫﺪف ﻣﻲ ﺑﺎﺷﺪ ﻛﻪ ﺑﺮ روى ١٥٠ ﻣﺮاﻗﺐ اﻧﺠﺎم ﺷﺪ. ﺑﺮاى ﺟﻤـﻊآورى اﻃﻼﻋـﺎت از ﭘﺮﺳﺸﻨﺎﻣﻪﻫﺎى اﻃﻼﻋﺎت دﻣﻮﮔﺮاﻓﻴﻚ، ﭘﺮﺳﺸﻨﺎﻣﻪ اﺳﺘﺎﻧﺪارد ﻓﺸﺎر ﻣﺮاﻗﺒﺘـﻲ، ﭘﺮﺳﺸـﻨﺎﻣﻪ آﻣـﺎدﮔﻲ ﺑـﺮاى ﻣﺮاﻗﺒـﺖ و ﭘﺮﺳﺸﻨﺎﻣﻪ ﻛﻴﻔﻴﺖ زﻧﺪﮔﻲ ﻣﺮاﻗﺒﻴﻦ اﺳﺘﻔﺎده ﺷﺪ. ﺗﺠﺰﻳﻪوﺗﺤﻠﻴﻞ دادهﻫﺎ ﺑﺎ اﺳﺘﻔﺎده از ﻧﺮماﻓـﺰار Spss (ﻧﺴـﺨﻪ ٢٥)، آزﻣﻮنﻫﺎى ﺗﻲ ﻣﺴﺘﻘﻞ، آﻧﺎﻟﻴﺰ وارﻳﺎﻧﺲ ﻳﻚ ﻃﺮﻓﻪ ، ﻫﻤﺒﺴﺘﮕﻲ ﭘﻴﺮﺳﻮن و ﺗﺤﻠﻴﻞ رﮔﺮﺳﻴﻮن ﭼﻨﺪﮔﺎﻧﻪ ﺑـﻪ ﺷـﻴﻮهى ﻫﻤﺰﻣﺎن اﻧﺠﺎم ﺷﺪ و ﺳﻄﺢ ﻣﻌﻨﻲدارى ﻧﻴﺰ ٠٥,٠ در ﻧﻈﺮ ﮔﺮﻓﺘﻪ ﺷﺪ.ﻳﺎﻓﺘﻪﻫﺎ: ﻳﺎﻓﺘﻪﻫﺎى ﺗﻮﺻﻴﻔﻲ ﻧﺸﺎن داد ﻣﻴﺎﻧﮕﻴﻦ و اﻧﺤﺮاف ﻣﻌﻴﺎر ﻣﺘﻐﻴﺮ آﻣﺎدﮔﻲ ﺑﺮاى ﻣﺮاﻗﺒﺖ ٣١/١٧ ±٠٥/٦ ﻓﺸﺎر ﻣﺮاﻗﺒﺘﻲ ٦٢/٢٨(٦٦/٧) و ﻛﻴﻔﻴﺖ زﻧﺪﮔﻲ ﻣﺮاﻗﺒﻴﻦ ﺑﺮاﺑﺮ ﺑﺎ ٢٣/٢٨(٤٨/٢) ﺑﻮد. ﻣﺘﻐﻴﺮ ﺳﻦ ﻣﺮاﻗﺒﻴﻦ ﺑﺎ ﻓﺸﺎر ﻣﺮاﻗﺒﺘﻲ و ﻣﺘﻐﻴﺮ آﻣﺎدﮔﻲ ﺑﺮاى ﻣﺮاﻗﺒﺖ ﺑﺎﻛﻴﻔﻴﺖ زﻧﺪﮔﻲ ﻣﺮاﻗﺒﻴﻦ راﺑﻄﻪى ﻣﺴﺘﻘﻴﻢ و ﻣﻌﻨﻲدار دارد؛ ﻫﻤﭽﻨﻴﻦ ﻣﺘﻐﻴﺮ آﻣﺎدﮔﻲ ﺑﺮاى ﻣﺮاﻗﺒﺖ ﺑﺎ ﻓﺸﺎر ﻣﺮاﻗﺒﺘﻲ و ﻣﺘﻐﻴﺮ ﻓﺸﺎر ﻣﺮاﻗﺒﺘﻲ ﺑﺎﻛﻴﻔﻴﺖ زﻧﺪﮔﻲ ﻣﺮاﻗﺒﻴﻦ راﺑﻄﻪى ﻣﻌﻜﻮس و ﻣﻌﻨﻲدار داﺷﺖ (٠٥/٠ .(p-value< ﻧﺘﻴﺠﻪﮔﻴﺮى:آﻣﺎدﮔﻲ ﺑﺮاى ﻣﺮاﻗﺒﺖ ﭘﻴﺶﺑﻴﻨﻲ ﻛﻨﻨﺪه ﻓﺸﺎر ﻣﺮاﻗﺒﺘﻲ اﺳﺖ. ﺑﻄﻮرﻳﻜﻪ ﺑـﺎ اﻓـﺰاﻳﺶ آﻣـﺎدﮔﻲ ﺑـﺮاى ﻣﺮاﻗﺒـﺖ ﻓﺸـﺎر ﻣﺮاﻗﺒﺘﻲ ﻣﺮاﻗﺒﻴﻦ ﻛﺎﻫﺶ ﻣﻲﻳﺎﺑﺪ. ﻫﻤﭽﻨﻴﻦ آﻣﺎدﮔﻲ ﺑﺮاى ﻣﺮاﻗﺒﺖ و ﻓﺸﺎر ﻣﺮاﻗﺒﺘﻲ ﭘﻴﺶﺑﻴﻨﻲ ﻛﻨﻨﺪهﻫﺎى ﻣﻌﻨـﻲدار ﻛﻴﻔﻴﺖ زﻧﺪﮔﻲ ﻣﺮاﻗﺒﻴﻦ ﻫﺴﺘﻨﺪ ﺑﻄﻮرﻳﻜﻪ ﺑﺎ اﻓﺰاﻳﺶ آﻣﺎدﮔﻲ ﺑﺮاى ﻣﺮاﻗﺒﺖ ﻛﻴﻔﻴﺖ زﻧﺪﮔﻲ ﻣﺮاﻗﺒﻴﻦ ﻧﻴﺰ اﻓﺰاﻳﺶ ﻣـﻲ ﻳﺎﺑﺪ و ﺑﺎ اﻓﺰاﻳﺶ ﻓﺸﺎر ﻣﺮاﻗﺒﺘﻲ ﻣﻴﺰان ﻛﻴﻔﻴﺖ زﻧﺪﮔﻲ ﻣﺮاﻗﺒﻴﻦ ﻛﺎﻫﺶ ﻣﻲﻳﺎﺑﺪ. ﺑﺎ ﺗﻮﺟﻪ ﺑﺎ ﻧﺘﺎﻳﺞ ﺣﺎﺻـﻞ از ﻣﻄﺎﻟﻌـﻪ، ﻛﻪ اﻓﺰاﻳﺶ آﻣﺎدﮔﻲ ﺑﺮاى ﻣﺮاﻗﺒﺖ ﻣﻮﺟﺐ ارﺗﻘﺎى ﻛﻴﻔﻴﺖ زﻧﺪﮔﻲ ﻣﺮاﻗﺒﻴﻦ ﺷﺪه اﺳﺖ، ﭘﻴﺸﻨﻬﺎد ﻣﻲ ﮔﺮدد ﺑﺮﻧﺎﻣﻪ ﻫﺎى آﻣﻮزﺷﻲ ﺟﻬﺖ ﻣﺮاﻗﺐ ﺑﻴﻤﺎر ﺑﻄﻮر ﻣﺪون و اﺻﻮﻟﻲ ﺗﺪاوم ﻳﺎﺑﺪ.ﻛﻠﻴﺪواژه : آﻣﺎدﮔﻲ ﺑﺮاى ﻣﺮاﻗﺒﺖ، ﻓﺸﺎر ﻣﺮاﻗﺒﺘﻲ، ﻛﻴﻔﻴﺖ زﻧﺪﮔﻲ، ﻣﺮاﻗﺒﻴﻦ ﺧﺎﻧﮕﻲ، آﻟﺰاﻳﻤﺮ
Objectives: Care provision for Alzheimer's patients is associated with many challenges. Caregivers face high levels of care burden which leads to their reduced quality of life. Therefore, the current paper aims to investigate the relationship between care burden, care preparedness and the quality of life in the home caregivers of the elderly with the Alzheimer's disease.Materials and Methods: This was a descriptive analysis research on ١٥٠ caregivers visiting Iran Alzheimer's Association, selected through simple random sampling and the table of random numbers. The instruments used in the study consisted of a care burden standard questionnaire, care preparedness questionnaire and caregivers' quality of life questionnaire. Data was analyzed using SPSS V٢٥ and statistical tests including independent t-test, one-way ANOVA, Pearson's correlation and simultaneous multiple regression analysis, with a significance level of ٠,٠٥.Results: According to the descriptive findings, the mean score (standard deviation) was calculated to be ١٧,٣١ (٦,٠٥) for the variable care preparedness, ٢٨,٦٢ (٧,٦٦) for care burden and ٢٨,٢٣ (٢,٤٨) for caregivers' quality of life. The results showed significant direct relationships between the age of caregivers and care burden, and also between the care preparedness and caregivers' quality of life. Moreover, there were significant negative relationships between care preparedness and care burden, and also between care burden and caregivers' quality of life (p-value < ٠,٠٥).Conclusion: Care preparedness is a predictor of care burden. An increase in care preparedness reduces caregivers' burden. Moreover, care preparedness and care burden are significant predictors of caregivers' quality of life. An increase in care preparedness causes an increase in caregivers' quality of life and an increase in care burden reduces caregivers' quality of life.Keywords: care preparedness, care burden, quality of life, home caregivers, the Alzheimer's disease