Exploring the Experiences of Nigerian Female Dementia Caregivers
[Thesis]
Nwakasi, Candidus C.
Miami University
2019
92 p.
Ph.D.
Miami University
2019
There is no formal word for dementia in Nigeria. Instead, people consider dementia an inevitable part of aging. Even so, people with dementia and their families are at risk of stigmatization. With its rapid aging, increased risk of dementia, and lack of formal long-term care, this study focused on the experiences of Nigerian women who are caring for a relative with dementia since women are at the center of informal long-term care in the country. The study employed a qualitative descriptive method. Semi-structured interviews were conducted with a purposive sample of 12 adult informal female caregivers in Anambra, Nigeria. Data were then analyzed for themes. Afterwards, focus groups involving 21 adult Nigerians residing in Ohio, US, were conducted to offer more insight on the findings. Three major themes were identified: making sense of dementia symptoms; perceived caregiving challenges and support; and "why we do it," which relates to the major reasons these women provide care. Understanding the experiences and perceptions of Nigerian female informal dementia caregivers is important to improving caregiving quality and quality of life of the caregiver and the person with dementia. Increasing dementia awareness is also important to mitigate the potential threats of stigmatization associated with dementia in Nigeria. Findings point to a likely growing household burden that affects some older adults and their families, especially adult women, and draws attention to the need for strategies to help strengthen informal caregiving in Nigeria. The study also identifies the need for dementia education and formal long-term care policies in a rapidly aging Nigeria.