عنوان

The Anticipatory Politics of Sickle Cell Disease:

شماره

TLpq2363244585

زبان متن نوشتاري يا گفتاري و مانند آن

انگلیسی

عنوان اصلي

The Anticipatory Politics of Sickle Cell Disease:

نام عام مواد

[Thesis]

نام نخستين پديدآور

Jae, Gina

عنوان اصلي به قلم نويسنده ديگر

An Examination of Policy, Practice, Care, and Innovation in the U.S. and France

نام ساير پديدآوران

Sharp, Lesley

نام ناشر، پخش کننده و غيره

Columbia University

تاریخ نشرو بخش و غیره

2020

نام خاص و کميت اثر

241

جزئيات پايان نامه و نوع درجه آن

Ph.D.

کسي که مدرک را اعطا کرده

Columbia University

امتياز متن

2020

متن يادداشت

Sickle cell disease (Fr: la drépanocytose) is an inherited blood disorder with over a century of biomedical history in the United States. In turn, with recent decades of migration, it has become the most common genetic disease in France. For those with sickle cell disease who also live in high-income countries, the past fifty years have transformed a fatal disease of childhood into a chronic, but still life-shortening condition. In countries like the U.S. and France, where sickle cell disease also disproportionately affects disadvantaged minorities and immigrants, scientific and clinical knowledge production around sickle cell disease has become entwined with race- and class-based history and politics. This research offers ethnographic understandings of how families and health care providers are negotiating the available options to treat sickle cell disease, including the high-risk undertaking of hematopoietic cell transplantation, in a moment when most children in high-income settings are expected to reach adulthood.

موضوع مستند نشده

Anticipation

موضوع مستند نشده

Care

موضوع مستند نشده

La drépanocytose

موضوع مستند نشده

Medical anthropology

موضوع مستند نشده

Politics

موضوع مستند نشده

Sickle cell disease

مستند نام اشخاص تاييد نشده

Jae, Gina

مستند نام اشخاص تاييد نشده

Sharp, Lesley

نام الکترونيکي

فرمت انتشار

p

نوع ماده

[Thesis]

کد کاربرگه

276903

سطح دسترسي

a

تكميل شده

Y