عنوان

The ethics and governance of human genetic databases :

شابک

0521856620 (hardback)

شابک

9780521856621 (hardback)

شماره

b527936

عنوان اصلي

The ethics and governance of human genetic databases :

نام عام مواد

[Book]

ساير اطلاعات عنواني

European perspectives /

نام نخستين پديدآور

edited by Matti Häyry ... [et al.]

محل نشرو پخش و غیره

New York :

نام ناشر، پخش کننده و غيره

Cambridge University Press,

تاریخ نشرو بخش و غیره

2007

نام خاص و کميت اثر

xi, 283 p. ;

ابعاد

24 cm

عنوان فروست

Cambridge law, medicine, and ethics

متن يادداشت

Includes bibliographical references (p. 257-275) and index

متن يادداشت

Introduction : some lessons of ELSAGEN / Vilhjálmur Árnason -- On human genetic databases / Gardar Árnason -- American principles, European values and the mezzanine rules of ethical genetic databanking / Matti Häyry and Tuija Takala -- The languages of privacy / Salvör Nordal -- A sociological perspective : public perceptions of privacy and their trust in institutions managing and regulating genetic databases / Kjell E. Eriksson ... [et al.] -- Estonia / Külliki Korts -- Iceland / Margrét Lilja Gudmundsdóttir and Salvör Nordal -- Sweden / Kjell E. Eriksson -- United Kingdom / Sue Weldon -- Public discourses on human genetic databases / Piia Tammpuu -- Regulating human genetic databases in Europe / Jane Kaye -- Consent and population genetic databases : a comparative analysis of the law in Iceland, Sweden, Estonia and the UK / Hördur Helgi Helgason -- Third parties' interests in population genetic databases : some comparative notes regarding the law in Estonia, Iceland, Sweden and the UK / Lotta Wendel -- Transforming principles of biolaw into national legislation : comparison of four national laws in three aspects / Ants Nõmper -- Governance of population genetic databases : a comparative analysis of legal regulation in Estonia, Iceland, Sweden and the UK / Susan M.C. Gibbons -- The legal jigsaw governing population genetic databases : concluding remarks on the ELSAGEN legal findings / Jane Kaye -- Introduction : ethical questions / Vilhjálmur Árnason -- Pursuing equality : questions of social justice and population genomics / Sarah Wilson and Ruth Chadwick -- Benefit-sharing and biobanks / Kadri Simm -- Genetic discrimination / Lena Halldenius -- Privacy / Salvör Nordal -- Trust / Margit Sutrop -- Informed consent and human genetic database research / Sigurdur Kristinsson and Vilhjálmur Árnason -- The impact of biobanks on ethical frameworks / Ruth Chadwick and Mark Cutter -- Genetics, rhetoric and policy / Gardar Árnason -- Genetic databases and governance / Rainer Kattel -- Bioethical analysis of the results : how well do laws and regulations address people's concerns? / Matti Häyry and Tuija Takala

بدون عنوان

0

موضوع مستند نشده

Human genetics-- Databases-- Moral and ethical aspects

موضوع مستند نشده

Biological Specimen Banks-- ethics-- Europe

موضوع مستند نشده

Databases, Genetic-- ethics-- Europe

موضوع مستند نشده

Genetic Privacy-- Europe

موضوع مستند نشده

Genetics, Medical-- ethics-- Europe

شماره

ويراست

شماره رده

نشانه اثر

شماره رده

شماره رده

نشانه اثر

مستند نام اشخاص تاييد نشده

Häyry, Matti

تاريخ عمليات

20080828000000.0

نام الکترونيکي

نوع ماده

[Book]

تكميل شده

Y