عنوان

Ethical issues in governing biobanks :

شابک

0754672557 (hardback : alk. paper)

شابک

9780754672555 (hardback : alk. paper)

شماره

b525928

عنوان اصلي

Ethical issues in governing biobanks :

نام عام مواد

[Book]

ساير اطلاعات عنواني

global perspectives /

نام نخستين پديدآور

edited by Bernice Elger ... [et al.]

محل نشرو پخش و غیره

Burlington, VT :

نام ناشر، پخش کننده و غيره

Ashgate Pub. Ltd.,

تاریخ نشرو بخش و غیره

c2008

نام خاص و کميت اثر

vi, 257 p. ;

ابعاد

24 cm

متن يادداشت

Includes bibliographical references and index

متن يادداشت

Biobanks, genomics, and research: a nightmare for public policy makers? / Alex Mauron -- Biobanks in the literature / Bartha Maria Knoppers and Maøn H. Abdul-Rahman -- Guidelines on biobanks: emerging consensus and unresolved controversies / Effy Vayena, Agomoni Ganguli-Mitra, and Nikola Biller-Andorno -- Ethical issues regarding research biobanks: aims, methods, and main results of a qualitative study among international and US experts / Nikola Biller-Andorno ... [et al.] -- Consent and use of samples / Bernice Elger -- Consent to research involving human biological samples obtained during medical care / Bernice Elger -- Collective consent / Agomoni Ganguli-Mitra -- Withdrawal of consent and destruction of samples / Bernice Elger -- Anonymization and coding / Bernice Elger -- Informing participants about research results / Andrea Boggio -- Ownership of samples and data and territorial restrictions concerning data and samples beyond national boundaries / Andrea Boggio -- Public domain sharing, patents, and fees resulting from research involving genetic databases / Andrea Boggio -- Benefit-sharing and remuneration / Agomoni Ganguli-Mitra -- Transfer of samples and sharing of results : requirements imposed on researchers / Andrea Boggio -- Towards an international framework: results of a meeting of an international group of scholars and scientists involved in legal and practical issues of biobanks / Alex Mauron -- Biobanks and genomic research : what shape the future? / Alex Capron

بدون عنوان

0

موضوع مستند نشده

Human genetics-- Databases-- Law and legislation

موضوع مستند نشده

Human genetics-- Databases-- Moral and ethical aspects

موضوع مستند نشده

Confidentiality

موضوع مستند نشده

Databases, Genetic-- ethics

موضوع مستند نشده

Databases, Genetic-- legislation & jurisprudence

موضوع مستند نشده

Genetic Research-- ethics

موضوع مستند نشده

Genetics, Population-- ethics

موضوع مستند نشده

Genome, Human

شماره

ويراست

شماره رده

نشانه اثر

شماره رده

شماره رده

نشانه اثر

مستند نام اشخاص تاييد نشده

Elger, Bernice S.,1964-

تاريخ عمليات

20090326000000.0

نام الکترونيکي

نوع ماده

[Book]

تكميل شده

Y