عنوان

Bioethical Deliberation on Genomic Testing:

Number

TLpq2250289739

.Language of Text, Soundtrack etc

انگلیسی

Title Proper

Bioethical Deliberation on Genomic Testing:

General Material Designation

[Thesis]

First Statement of Responsibility

Al Shakaki, Alya

Title Proper by Another Author

Islamic Perspectives

Subsequent Statement of Responsibility

Ghaly, Mohammed

Name of Publisher, Distributor, etc.

Hamad Bin Khalifa University (Qatar)

Date of Publication, Distribution, etc.

2019

Specific Material Designation and Extent of Item

125

Dissertation or thesis details and type of degree

M.A.

Body granting the degree

Hamad Bin Khalifa University (Qatar)

Text preceding or following the note

2019

Text of Note

The "ethical aspects of genomic testing" is a global, contemporary, rising, and challenging topic, and it is certainly worthy of careful analysis and research. Furthermore, it is relevant to the State of Qatar as it launched the Qatar Genome Programme (QGP) in 2013. By performing genomic testing, we can know a huge amount of information about the body of the tested person. We can also predict some diseases with high certainty. Furthermore, testing one person may reveal highly relevant information about other family members as well. These characteristics of genomic testing raise complex ethical questions and dilemmas regarding performing the test in the first place, and in disclosing and managing the obtained results of the test. The main objective of this thesis is to give a comprehensive overview of the ethical aspects of this contemporary issue in order to have a good understanding of its complex dimensions. To achieve this goal, relevant data are analyzed that are related to three main areas, namely the scientific and medical aspects of genomic testing, including possible benefits and harms; the key ethical challenges and dilemmas related to genomic testing as described in Western bioethics literature; and finally, the Islamic ethical perspectives. Within this work, two real case-studies have been discussed. The first one is related to a Qatari patient recruited in Hamad General Hospital (HGH), and the ethical dilemma discussed concerns incidental findings. The second case-study is related to the ethics of management of a late-onset disease, Huntington disease. While Islamic tradition is rich in general in its sources and methodologies, the Islamic discourse on the contemporary issue of genomics testing still needs more effort to develop a comprehensive discourse. This thesis can help in achieving this goal.

Islamic Studies

Medical Ethics

Al Shakaki, Alya

Ghaly, Mohammed

Electronic name

p

[Thesis]

276903

a

Y