Biobanks and governance : an introduction / Herbert Gottweis and Alan Petersen -- Biobanks in action : new strategies in the governance of life / Herbert Gottweis -- The rise and fall of a biobank : the case of Iceland / Gísli Pálsson -- Estonia : ups and downs of a biobank project / Rain Eensaar -- Patient organizations as the (un)usual suspects : the biobanking activities of the Association française contre les myopathies and its Généthon DNA and Cell Bank / Michaela Mayrhofer -- "This is not a national biobank" : the politics of local biobanks in Germany / Ingrid Schneider -- Governing DNA : prospects and problems in the proposed large United States population cohort / Amy Fletcher -- Governance by stealth : large-scale pharmacogenomics and biobanking in Japan / Robert Triendl and Herbert Gottweis -- UK biobank : bioethics as a technology of governance / Oonagh Corrigan and Alan Petersen -- Biobanks and the biopolitics of inclusion and representation / Richard Tutton -- The informed consenters : governing biobanks in Scandinavia / Lars Øystein Ursin, Klaus Hoeyer, & John-Arne Skolbekken -- Framing consent : the politics of "engagement" in an Australian biobank project / Beverley McNamara and Alan Petersen -- Governing through biobanks : research populations in Israel / Barbara Prainsack.
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ACQUISITION INFORMATION NOTE
Source for Acquisition/Subscription Address
Ingram Content Group
Stock Number
9781134090266
OTHER EDITION IN ANOTHER MEDIUM
Title
Biobanks.
International Standard Book Number
0415427371
TOPICAL NAME USED AS SUBJECT
Biobanks-- Government policy, Cross-cultural studies.
Biobanks-- Political aspects, Cross-cultural studies.
Human genetics-- Databases-- Moral and ethical aspects, Cross-cultural studies.