biomedical research, ethics, and law in the era of genomic medicine /
First Statement of Responsibility
Robert F. Weir, Robert S. Olick with Jeffrey C. Murray.
.PUBLICATION, DISTRIBUTION, ETC
Place of Publication, Distribution, etc.
New York :
Name of Publisher, Distributor, etc.
Oxford University Press,
Date of Publication, Distribution, etc.
2004.
PHYSICAL DESCRIPTION
Specific Material Designation and Extent of Item
1 online resource (xvii, 339 pages)
INTERNAL BIBLIOGRAPHIES/INDEXES NOTE
Text of Note
Includes bibliographical references and index.
CONTENTS NOTE
Text of Note
Unprecedented cases, debatable changes, and new challenges -- Concerns about some common research practices -- The controversy over stored tissues, research practices, and informed consent -- Molecular genetics: tissue samples in the laboratory -- Recommendations and policies in other countries -- The federal regulations for human tissue research: summary and assessment -- The larger legal framework for human tissue research -- The NBAC report: recommendations and limitations -- Updating informed consent in the era of genomic medicine -- Beyond informed consent: other ethical issues and concerns -- An agenda for the near future.
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SUMMARY OR ABSTRACT
Text of Note
This book provides a thorough, well-balanced analysis of common research practices with banked tissues, DNA, and genetic data. Describing many examples of beneficial tissue research, the authors focus on problematic research practices, controversial cases, and federal and institutional policies that limit the informed choices of patients and research participants. They offer a series of recommendations to help overcome these problems.
SYSTEM REQUIREMENTS NOTE (ELECTRONIC RESOURCES)
Text of Note
Master and use copy. Digital master created according to Benchmark for Faithful Digital Reproductions of Monographs and Serials, Version 1. Digital Library Federation, December 2002.
ACQUISITION INFORMATION NOTE
Source for Acquisition/Subscription Address
CRKN/MyiLibrary
Source for Acquisition/Subscription Address
MIL
Stock Number
076116
Medium
FormOnline
Terms of Availability
CostDepend
OTHER EDITION IN ANOTHER MEDIUM
Title
Stored tissue issue.
International Standard Book Number
0195123689
TOPICAL NAME USED AS SUBJECT
Preservation of organs, tissues, etc-- Moral and ethical aspects.
Ethics, Medical.
Organ Preservation.
Biomedical research.
Medical ethics.
MEDICAL-- Ethics.
Preservation of organs, tissues, etc.-- Moral and ethical aspects.