عنوان

The Official Patient's Sourcebook on Porphyria.

(Number (ISBN

0597834016

(Number (ISBN

9780597834011

Number

b715207

Title Proper

The Official Patient's Sourcebook on Porphyria.

General Material Designation

[Book]

Name of Publisher, Distributor, etc.

ICON Group

Date of Publication, Distribution, etc.

2002.

Specific Material Designation and Extent of Item

1 online resource (220)

Text of Note

Cover -- TOC36;Contents -- Introduction -- Overview -- Organization -- Scope -- Moving Forward -- PART I58; THE ESSENTIALS -- CH36;Chapter 146; The Essentials on Porphyria58; Guidelines -- Overview -- What Is Porphyria63; -- For More Information -- Additional Information on Porphyria -- More Guideline Sources -- Vocabulary Builder -- CH36;Chapter 246; Seeking Guidance -- Overview -- Associations and Porphyria -- Finding More Associations -- Finding Doctors -- Selecting Your Doctor -- Working with Your Doctor -- Broader Health45;Related Resources -- Vocabulary Builder -- CH36;Chapter 346; Clinical Trials and Porphyria -- Overview -- Recent Trials on Porphyria -- Benefits and Risks -- Keeping Current on Clinical Trials -- General References -- Vocabulary Builder -- PART II58; ADDITIONAL RESOURCES AND ADVANCED MATERIAL -- CH36;Chapter 446; Studies on Porphyria -- Overview -- The Combined Health Information Database -- Federally45;Funded Research on Porphyria -- E45;Journals58; PubMed Central -- The National Library of Medicine58; PubMed -- Vocabulary Builder -- CH36;Chapter 546; Books on Porphyria -- Overview -- Book Summaries58; Online Booksellers -- The National Library of Medicine Book Index -- Chapters on Porphyria -- Directories -- General Home References -- Vocabulary Builder -- CH36;Chapter 646; Physician Guidelines and Databases -- Overview -- NIH Guidelines -- NIH Databases -- Other Commercial Databases -- The Genome Project and Porphyria -- Specialized References -- Vocabulary Builder -- CH36;Chapter 746; Dissertations on Porphyria -- Overview -- Dissertations on Porphyria -- Keeping Current -- Vocabulary Builder -- PART III46; APPENDICES -- Appendix A46; Researching Your Medications -- Overview -- Your Medications58; The Basics -- Learning More about Your Medications -- Commercial Databases -- Contraindications and Interactions 40;Hidden Dangers41; -- A Final Warning -- General References -- Vocabulary Builder -- Appendix B46; Researching Alternative Medicine -- Overview -- What Is CAM63; -- What Are the Domains of Alternative Medicine63; -- Can Alternatives Affect My Treatment63; -- Finding CAM References on Porphyria -- Additional Web Resources -- General References -- Vocabulary Builder -- Appendix C46; Researching Nutrition -- Overview -- Food and Nutrition58; General Principles -- Finding Studies on Porphyria -- Federal Resources on Nutrition -- Additional Web Resources -- Vocabulary Builder -- Appendix D46; Finding Medical Libraries -- Overview -- Preparation -- Finding a Local Medical Library -- Medical Libraries Open to the Public -- Appendix E46; Your Rights and Insurance -- Overview -- Your Rights as a Patient -- Patient Responsibilities -- Choosing an Insurance Plan -- Medicare and Medicaid -- NORDs Medication Assistance Programs -- Additional Resources -- Vocabulary Builder -- ONLINE GLOSSARIES -- Online Dictionary Directories -- PORPHYRIA GLOSSARY -- General Dictionaries and Glossaries -- IDX36;INDEX -- Last Page.

0

Text of Note

This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to porphyria (also Acute intermittent porphyria; Congenital erythropoietic porphyria; Congenital Porphyria; Delta-aminolevulinic aciduria; Erythropoietic protoporphyria; Guenther Porphyria), from the essentials to the most advanced areas of research. The title of this book incl.

K

Number

Class number

Parker, James N.

Parker, Philip M.

Date of Transaction

20201208052958.0

Cataloguing Rules (Descriptive Conventions))

pn

Electronic name

[Book]

Y