building a program for adolescents and young adults with chronic illness and disability /
First Statement of Responsibility
Albert C. Hergenroeder, Constance M. Wiemann, editors.
.PUBLICATION, DISTRIBUTION, ETC
Place of Publication, Distribution, etc.
Cham, Switzerland :
Name of Publisher, Distributor, etc.
Springer,
Date of Publication, Distribution, etc.
2018.
PHYSICAL DESCRIPTION
Specific Material Designation and Extent of Item
1 online resource
GENERAL NOTES
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Includes index.
CONTENTS NOTE
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Intro; Preface; Contents; Contributors; Part I: Introduction; 1: Introduction: Historical Perspectives, Current Priorities, and Healthcare Transition Processes, Evidence, and Measurement; Health-Care Transition in the United States; Historical Perspectives and Current National Organization Priorities; Current Health-Care Transition Priorities and National Professional HCT Efforts; Snapshot of Chronic Conditions in Adolescents and Young Adults in Transition; Health-Care Transition Needs of Youth and Young Adults.
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3: The Relationships of Adolescent Behaviours to Adolescent Brain Changes and their Relevance to the Transition of Adolescents and Young Adults with Chronic Illness and DisabilityIntroduction; Possible Links Between Adolescent Behaviour and Brain Changes; Risk-Taking and Novelty Seeking; Social Behaviour; Sleep; Relevance to Healthcare and Transition of Adolescents and Young Adults with Chronic Illness and Disability; Conclusion to Chaps. 2 and 3; References; Part III: Personal and Professional Perspectives on Healthcare Transition; 4: Healthcare Transition from the AYASHCN's Perspective.
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Special Considerations for AYASHCN with Cognitive DelayTransition Planning in a Clinical Setting; Promoting Self-Efficacy; Technology; Promoting Self-Advocacy; The Role of Parents in Preparing for HCT; Finding an Adult Provider; Parents' Recommendations; Terminating the Relationship with the Pediatrician; References; 6: Healthcare Transition from the Pediatric Provider's Perspective; Barriers Encountered by Healthcare Providers; Lack of Training; Lack of Structure for HCT Planning; Service Reimbursement; AYASHCN and Family Reluctance to Transfer Care.
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The Six Core Elements of HCT Quality Improvement Process and Evidence for Structured HCT InterventionsHealth-Care Transition Process and Outcome Measurement; Health-Care Transition Interventions and Models of Care; References; Part II: The Adolescent and Young Adult: A Developmental Perspective; 2: The Anatomical, Hormonal and Neurochemical Changes that Occur During Brain Development in Adolescents and Young Adults; Anatomical, Hormonal and Neurochemical Changes; Cortical Grey Matter; Sub-Cortical Grey Matter; White Matter; Pubertal Hormones; Neurotransmitters; Summary; References.
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When an Illness Is Life-LimitingHCT as a Normative Event; Promoting Autonomy in Disease Management by Family and Health-ƯCare Providers; The Role of Parents; The Role of Peers/Support Groups; Promoting Self-Efficacy with Treatments; Advice for Parents; School; Promoting Self-Advocacy; Readiness to Transition; Addressing Mental Health, Substance Use, and Reproductive Health Issues; Finding an Adult Provider; Terminating the Relationship with the Pediatrician; References; 5: Healthcare Transition from the Family Perspective; Hearing About Health Care Transition (HCT); Why HCT Is Important.
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SUMMARY OR ABSTRACT
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This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient's disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process - youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.