عنوان

The ethics and governance of human genetic databases :

(Number (ISBN

0521856620 (hardback)

(Number (ISBN

9780521856621 (hardback)

Number

b527936

Title Proper

The ethics and governance of human genetic databases :

General Material Designation

[Book]

Other Title Information

European perspectives /

First Statement of Responsibility

edited by Matti Häyry ... [et al.]

Place of Publication, Distribution, etc.

New York :

Name of Publisher, Distributor, etc.

Cambridge University Press,

Date of Publication, Distribution, etc.

2007

Specific Material Designation and Extent of Item

xi, 283 p. ;

Dimensions

24 cm

Series Title

Cambridge law, medicine, and ethics

Text of Note

Includes bibliographical references (p. 257-275) and index

Text of Note

Introduction : some lessons of ELSAGEN / Vilhjálmur Árnason -- On human genetic databases / Gardar Árnason -- American principles, European values and the mezzanine rules of ethical genetic databanking / Matti Häyry and Tuija Takala -- The languages of privacy / Salvör Nordal -- A sociological perspective : public perceptions of privacy and their trust in institutions managing and regulating genetic databases / Kjell E. Eriksson ... [et al.] -- Estonia / Külliki Korts -- Iceland / Margrét Lilja Gudmundsdóttir and Salvör Nordal -- Sweden / Kjell E. Eriksson -- United Kingdom / Sue Weldon -- Public discourses on human genetic databases / Piia Tammpuu -- Regulating human genetic databases in Europe / Jane Kaye -- Consent and population genetic databases : a comparative analysis of the law in Iceland, Sweden, Estonia and the UK / Hördur Helgi Helgason -- Third parties' interests in population genetic databases : some comparative notes regarding the law in Estonia, Iceland, Sweden and the UK / Lotta Wendel -- Transforming principles of biolaw into national legislation : comparison of four national laws in three aspects / Ants Nõmper -- Governance of population genetic databases : a comparative analysis of legal regulation in Estonia, Iceland, Sweden and the UK / Susan M.C. Gibbons -- The legal jigsaw governing population genetic databases : concluding remarks on the ELSAGEN legal findings / Jane Kaye -- Introduction : ethical questions / Vilhjálmur Árnason -- Pursuing equality : questions of social justice and population genomics / Sarah Wilson and Ruth Chadwick -- Benefit-sharing and biobanks / Kadri Simm -- Genetic discrimination / Lena Halldenius -- Privacy / Salvör Nordal -- Trust / Margit Sutrop -- Informed consent and human genetic database research / Sigurdur Kristinsson and Vilhjálmur Árnason -- The impact of biobanks on ethical frameworks / Ruth Chadwick and Mark Cutter -- Genetics, rhetoric and policy / Gardar Árnason -- Genetic databases and governance / Rainer Kattel -- Bioethical analysis of the results : how well do laws and regulations address people's concerns? / Matti Häyry and Tuija Takala

0

Human genetics-- Databases-- Moral and ethical aspects

Biological Specimen Banks-- ethics-- Europe

Databases, Genetic-- ethics-- Europe

Genetic Privacy-- Europe

Genetics, Medical-- ethics-- Europe

Number

Edition

Class number

Book number

Class number

Class number

Book Number

Häyry, Matti

Date of Transaction

20080828000000.0

Electronic name

[Book]

Y