عنوان

The ethics of research biobanking

(Number (ISBN

0387938729 (e-isbn)

(Number (ISBN

9780387938721 (e-isbn)

Erroneous ISBN

0387938710

Erroneous ISBN

9780387938714

Number

dltt

Title Proper

The ethics of research biobanking

General Material Designation

[Book]

First Statement of Responsibility

Jan Helge Solbakk, Søren Holm, Bjørn Hofmann, editors

Place of Publication, Distribution, etc.

London :

Name of Publisher, Distributor, etc.

Springer,

Date of Publication, Distribution, etc.

c2009

Specific Material Designation and Extent of Item

1 online resource (xviii, 357 p.) :

Other Physical Details

ill

Text of Note

Includes bibliographical references and index

Text of Note

Research biobanking : the traditional approach. Consent to biobank research : one size fits all? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm -- What no one knows cannot hurt you : the limits of informed consent in the emerging world of biobanking / Arthur L. Caplan -- Users and uses of the biopolitics of consent : a study of DNA banks / Pascal Ducournau and Anne Cambon-Thomsen -- Information rights on the edge of ignorance / Anne Maria Skrikerud -- The dubious uniqueness of genetic information / Anne Maria Skrikerud -- Duties and rights of biobank participants : principled autonomy, consent, voluntariness and privacy / Lars Øystein Ursin -- Biobanking and disclosure of research results : addressing the tension between professional boundaries and moral intuition / Lynn G. Dressler -- Biobanks and our common good / Erik Christensen -- Trust, distrust and co-production : the relationship between research biobanks and donors / Pascal Ducournau and Roger Strand -- Scientific citizenship, benefit, and protection in population-based research / Vilh́jalmur Árnason -- Research biobanking : towards a new conceptual approach. Mapping the language of research biobanking : an analogical approach / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm -- The use of analogical reasoning in umbilical cord blood biobanking / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm -- The Alexandria plan : creating libraries for human tissue research and therapeutic use / Laurie Zoloth -- The art of biocollections / Anne Hambro Alnæs -- The health dugnard : biobank participation as the solidary pursuit of the common good / Lars Øystein Ursin and Berge Solberg -- Embodied gifting : reflections on the role of information in biobank recruitment / Klaus Hoeyer -- Conscription to biobank research? / Bjørn Hofmann, Jan Helge Solbakk, Søren Holm -- Ownership rights in research biobanks : do we need a new king of 'biological property'? / Paula Lobato de Faria -- Legal challenges and strategies in the regulation of research biobanking / Elisabeth Rynning -- Annexation of life : the biopolitics of industrial biology / Jan Reinert Karlsen and Roger Strand -- In the ruins of Babel : should biobank regulations be harmonized / Jan Reinert Karlsen, Jan Helge Solbak, and Roger Strand

0

Title

Ethics of research biobanking.

International Standard Book Number

9780387938714

Title

OhioLINK electronic book center (Online)

Title

SpringerLink

Biobanks-- Moral and ethical aspects

Bioethics

Biological resource centers-- Moral and ethical aspects

Biological specimens-- Moral and ethical aspects

Bioethical Issues

Biological Specimen Banks-- ethics

Biological Specimen Banks-- legislation & jurisprudence

Biomedical Research-- ethics

Ethics, Research

Genetic Research-- ethics

Informed Consent

Intellectual Property

Ownership

Tissue and Organ Procurement-- ethics

Tissue Donors

Number

Edition

Class number

Class number

Book number

Book number

Hofmann, Bjørn

Holm, Søren,1963-

Solbakk, Jan Helge

Date of Transaction

20160427145011.0

Electronic name

[Book]

Y