Includes bibliographical references (pages 311-394) and index.
How to study a biopolitical paradigm -- Histories of the human subject -- The rise of resistance : framing the critique of the standard human -- The path to reform : aligning categories, targeting the state -- Opposition to reform : controversy, closure, and boundary work -- Formalizing the new regime -- From the standard human to niche standardization -- Counts and consequences : monitoring compliance -- The science of recruitmentology and the politics of trust -- To profile or not to profile : what difference does race make? -- Sex differences and the new politics of women's health -- Whither the paradigm?
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With Inclusion, Steven Epstein argues that strategies to achieve diversity in medical research mask deeper problems, ones that might require a different approach and different solutions. Formal concern with this issue, Epstein shows, is a fairly recent phenomenon. Until the mid-1980s, scientists often studied groups of white, middle-aged men?and assumed that conclusions drawn from studying them would apply to the rest of the population. But struggles involving advocacy groups, experts, and Congress led to reforms that forced researchers to diversify the population from which they drew for clin.
Inclusion.
0226213099
Clinical trials-- Social aspects-- United States.
Health and race-- United States.
Human experimentation in medicine-- Social aspects-- United States.
Medicine-- Research-- Social aspects-- United States.
Minorities-- Medical care-- United States.
Social medicine-- United States.
Classification, methods-- United States.
Cultural Diversity-- United States.
Politics-- United States.
Population Groups-- United States.
Research Subjects-- United States.
Clinical trials.
Diversiteit.
Geneeskunde.
Health and race.
Human experimentation in medicine-- Social aspects.