The Official Patient's Sourcebook on Parry-Romberg Syndrome.
[Book]
ICON Group
2002.
1 online resource (104)
Cover -- TOC36;Contents -- Introduction -- Overview -- Organization -- Scope -- Moving Forward -- PART I58; THE ESSENTIALS -- CH36;Chapter 146; The Essentials on Parry45;Romberg Syndrome58; Guideli -- Overview -- What Is Parry45;Romberg Syndrome63; -- Is There Any Treatment63; -- What Is the Prognosis63; -- What Research Is Being Done63; -- For More Information -- More Guideline Sources -- Vocabulary Builder -- CH36;Chapter 246; Seeking Guidance -- Overview -- Associations and Parry45;Romberg Syndrome -- Finding More Associations -- Finding Doctors -- Finding a Neurologist -- Selecting Your Doctor -- Working with Your Doctor -- Broader Health45;Related Resources -- Vocabulary Builder -- PART II58; ADDITIONAL RESOURCES AND ADVANCED MATERIAL -- CH36;Chapter 346; Studies on Parry45;Romberg Syndrome -- Overview -- Federally45;Funded Research on Parry45;Romberg Syndrome -- E45;Journals58; PubMed Central -- The National Library of Medicine58; PubMed -- Vocabulary Builder -- CH36;Chapter 446; Books on Parry45;Romberg Syndrome -- Overview -- Book Summaries58; Online Booksellers -- The National Library of Medicine Book Index -- Chapters on Parry45;Romberg Syndrome -- General Home References -- Vocabulary Builder -- CH36;Chapter 546; Multimedia on Parry45;Romberg Syndrome -- Overview -- Bibliography58; Multimedia on Parry45;Romberg Syndrome -- Vocabulary Builder -- PART III46; APPENDICES -- Appendix A46; Researching Your Medications -- Overview -- Your Medications58; The Basics -- Learning More about Your Medications -- Commercial Databases -- Contraindications and Interactions 40;Hidden Dangers41; -- A Final Warning -- General References -- Appendix B46; Finding Medical Libraries -- Overview -- Preparation -- Finding a Local Medical Library -- Medical Libraries Open to the Public -- Appendix C46; Your Rights and Insurance -- Overview -- Your Rights as a Patient -- Patient Responsibilities -- Choosing an Insurance Plan -- Medicare and Medicaid -- NORDs Medication Assistance Programs -- Additional Resources -- ONLINE GLOSSARIES -- Online Dictionary Directories -- PARRY45;ROMBERG SYNDROME GLOSSARY -- General Dictionaries and Glossaries -- IDX36;INDEX -- Last Page.
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This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to parry-romberg syndrome (also Progressive Facial Hemiatrophy; Progressive Hemifacial Atrophy; Romberg Syndrome), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws fro.