confronting fate and family secrets in the age of genetic testing /
Robert L. Klitzman
New York :
Oxford University Press,
c2012
x, 365 p. ;
25 cm
Includes bibliographical references and index
Embarking on genetic journeys : introduction -- Do I want to know? : testing decisions -- Whom should I tell? : disclosures and testing in families -- Genetic test as Rorschach : questions of why me? -- Am I my genes? : genetic identities -- Lightning doesn't strike twice : myths and misunderstandings about genetics -- What should I do about my genes? : deciding on treatment -- Passing it on? : reproductive choices -- There's only privacy if you make it : problems with privacy and insurance -- Keep it in the family? : other disclosures beyond kin -- Crossing over : entering genetic communities -- Testing everyone? : gene politics -- Genes in everyday life
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"A book that is at once scholarly, comprehensive, and accessible, Dr. Klitzman brings his wisdom to the major issues that confront sufferers from disorders with a strong genetic underpinning. Klitzman and the men and women he interviews address the predicaments and moral dilemmas facing patients and families in an age of personalized medicine: whether to test, whom to tell, and how to integrate awareness of disease into the sese of self."--Provided by publisher